Signing up is easy! You will use your name, email address, date of your birth and the name of your relative to sign up.
The name Kinlist is the result of combining next of kin and checklist. Kinlist is a website to help family members organize tasks required to manage affairs such as requesting important documents, notifying government and financial agencies, closing bank, email and social media accounts, and filing insurance claims after a loved one’s sudden death. Importantly, Kinlist provides information to help families learn about potential health risks and gives guidance to manage health. Since most sudden death is related to cardiovascular disease (heart disease), the main focus is on assessing risk and education about heart disease.
Click here to learn more about how Kinlist was created. Kinlist is made possible by funding from the Murray Davis Center for the Prevention of Sudden Cardiac Death in UCSF Cardiology.
Kinlist is freely available to assist families handle a loved one’s affairs after a sudden, unexpected loss. Adult first degree relatives of a sudden cardiac death victim (SCD) can complete Kinlist’s health section which offers personalized cardiac assessment and suggested medical tests that may help detect, manage, and/or prevent serious heart conditions associated with SCD. This section also provides information on the causes of SCD, support and advocacy resources that may help surviving family members cope with the loss, and optional research opportunities. Kinlist is not a substitute for medical care, but provides information to educate and empower families who’ve lost a close relative to SCD.
Blood-related first degree relatives (FDRs) include parents, siblings and children who share genetic information. The risk assessment focuses on blood-related FDRs because some disorders that cause sudden cardiac death (SCD) are inherited (“run in the family”) putting close family members at increased risk.
Not necessarily, it is important to speak with your medical provider about your family history to ensure everyone in the family receives appropriate medical care. Hereditary heart conditions are manageable and sudden death is preventable with proper cardiac screening and treatment. Kinlist is not a substitute for medical care, but provides information to educate and empower families who’ve lost a close relative to SCD.
Currently, the risk assessment is designed for adult first degree relatives (FDRs) of adult sudden cardiac death (SCD) victims. This assessment is not appropriate for either FDRs -or- for SCD victims under age 18. Consult a medical provider regarding risk for surviving children and family members of SCD victims under 18.
Absolutely. We take this VERY seriously, and will do everything we can to protect your information and keep it private and secure. Read the Privacy Policy.
The information you entered on Kinlist will remains secure for your personal use. Only with your consent, the medical survey data can be used for research to further understanding of sudden cardiac death (SCD), improve risk prediction, and eventually prevent SCD.
A sudden cardiac death (SCD) is a tragic loss for one’s surviving family members, friends and community. SCD is the leading cause of death in developed countries but our understanding of the underlying causes and ability to identify individuals at increased risk is not well understood. The medical information contributed to research may help answer these questions and ultimately prevent sudden cardiac death.
If you have questions about the site or if you have difficulty signing up, please email kinlistcoordinator@ucsf.edu. If you have questions about the health portion of the site, email kinlisthealth@ucsf.edu.