Kinlist Terms and Conditions

By using this site, you signify your agreement to the terms and conditions set forth herein (the “Terms”). If you do not agree to all of these Terms and Conditions of use, you may not use this site. Please read these terms carefully, and keep a copy of them for your reference.

Agreement between User and Kinlist

Kinlist is a website created and operated by researchers and physicians at the University of California San Francisco. It is intended to provide a service to relatives who have had a loved one pass from sudden cardiac death, to promote awareness of sudden cardiac death, to provide information to help relatives assess their medical risk, and to collect information to better predict and understand the causes of sudden cardiac death.

Kinlist provides information about medical conditions that may increase risk for serious heart problems, including sudden cardiac death in adults. We hope that the information obtained on this site will help you to be better able to participate with your health care providers in making informed decisions about your medical care. This information is not professional medical advice to you and it is not a substitute for appropriate professional medical treatment or diagnosis. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding symptoms, medical conditions, and/or concerning family history. Never disregard professional medical advice or delay in seeking it because of something you have read on this site.

The website also helps family members organize tasks required to manage affairs after a loved one’s sudden death such as requesting important documents, notifying government and financial agencies, closing bank, email and social media accounts, and filing insurance claims. The information is not intended as legal advice and is not a substitute for professional legal advice that you would receive from a lawyer. Always seek the advice of your lawyer or other qualified legal representative with any legal questions you may have.

Neither The Regents of the University of California nor its officers, agents or employees assume any legal liability or responsibility for the accuracy, completeness or usefulness of any information, apparatus, product or medical procedure described.


Your use of Kinlist is subject to the Privacy Policy, which is hereby incorporated by reference.  Please review the Privacy Policy, which also governs the website and informs users of our data collection practices.

Children and Minors Under 18

Users must be 18 or older in order to use Kinlist. Kinlist is not intended or designed for use by children and minors under the age of 18.

Links to Third Party Sites/Third Party Services

Kinlist contains links to other websites (‘Linked Sites”).  The Linked Sites are not under the control of Kinlist and Kinlist is not responsible for the contents of any Linked Site, including without limitation any link contained in a Linked site, or any changes or updates to a Linked site.  Kinlist is providing these links to you only as a convenience, and the inclusion of any link does not imply endorsement by Kinlist of the site of any association with its operators.

Kinlist is not responsible for any services or functionalities made available via Kinlist and delivered by third party sites and organizations.

No Unlawful or Prohibited Use/Intellectual Property

You are granted a non-exclusive, non-transferable, revocable license to access and use Kinlist strictly in accordance with these Terms.  As a condition of your use of the Site, you warrant to Kinlist that you will not use the website beyond the scope of the license described above or for any purpose that is unlawful or prohibited by these Terms.  UCSF retains all copyright, trademark and other intellectual property rights in Kinlist and the Kinlist website.

You will not modify, publish, transmit, revise, engineer, participate in the transfer or sale, create derivative works, or in any way exploit any of the content in whole or in part, found on Kinlist.   

Liability of UCSF

The use of Kinlist and its content is at your own risk.

When using the Kinlist website, information will be transmitted over a medium that may be beyond the control and jurisdiction of UCSF and its suppliers. Accordingly, UCSF assumes no liability for or relating to the delay, failure, interruption, or corruption of any data or other information transmitted in connection with use of Kinlist.


In no event shall UCSF be liable for any damages (including, without limitation, incidental and consequential damages, personal injury/wrongful death, lost profits, or damages resulting from lost data or business interruption) resulting from the use of or inability to use Kinlist or its content, whether based on warranty, contract, tort, or any other legal theory, and whether or not UCSF, its licensors, its suppliers, or any third parties mentioned on Kinlist are advised of the possibility of such damages.

Termination/Access Restriction

UCSF reserves the right, in its sole discretion, to terminate your access to Kinlist and the related services or any portion thereof at any time, without notice, to the maximum extent permitted by law. This agreement is covered by the laws of the State of California, and you hereby consent to the exclusive jurisdiction and venue of courts in California in all disputes arising or relating to the use of the site.  Use of the site is unauthorized in any jurisdiction that does not give effect to all provision of these Terms, including, without limiting this section.

Changes to Terms

UCSF may revise and update these Terms at any time. Your continued usage of the Kinlist will mean you accept those changes.  The most current version of the Terms will supersede all previous versions.  UCSF encourages you to periodically review the Terms to stay informed of our updates.

User Submissions

The Site contains functionality (including surveys, message boards…etc.)  that allows users to upload content to the website (collectively "Public Areas"). You agree that you will not upload or transmit any communications or content of any type to the Public Areas that infringe or violate any rights of any party. By submitting communications or content to the Public Areas, you represent and warrant that such submission is and shall be non-confidential for all purposes.


Kinlist has several tools that allow you to record and store information. You are responsible for taking all reasonable steps to ensure that no unauthorized person shall have access to your Kinlist passwords or accounts. It is your sole responsibility to (1) control the dissemination and use of sign-in name, screen name and passwords; (2) authorize, monitor, and control access to and use of your Kinlist account and password; (3) promptly inform UCSF if you believe your account or password has been compromised or if there is any other reason you need to deactivate a password. To send us an email, use the "Contact Us" link located at the end of our site. You grant UCSF and all other persons or entities involved in the operation of the Site the right to transmit, monitor, retrieve, store, and use your information in connection with the operation of the Site. UCSF cannot and does not assume any responsibility or liability for any information you submit, or your or third parties' use or misuse of information transmitted or received using Kinlist tools and services.

Contact us:

The Kinlist team welcomes your questions or comments regarding the Terms: